• Text size
  • A
  • A
  • A



Get involved as a lay member in developing NICE guideline on Children and young people with disabilities & severe complex needs


The National Institute for Health and Care Excellence (NICE) are looking for people with an understanding of the health and social care support that is important for children and young people with disabilities and severe complex needs.

This guideline will cover children and young people from birth to 25 years with disabilities (as defined by the Equality Act 2010 - so someone who has a physical or mental impairment that has a substantial and long-term negative effect on your ability to do normal daily activities) and severe complex needs.

Severe complex needs refers to an ongoing need for integrated health and social care support and services.

They need you to join a committee developing NICE guidance for the NHS and local government, if you:

  • have personal experience as a disabled child or young person with severe and complex needs and have received treatment and care provided by the NHS and social care services (please note that you need to be 16 and over to join this committee)
  • are a parent, relative or unpaid carer of a child or young person who has used relevant health and social care services
  • are a volunteer or employee of a relevant voluntary organisation or support group

Time needed:

Meetings happen roughly every 6 – 8 weeks for 18 months

Meetings happen in:

London (NICE will pay for you to travel to meetings and stay overnight if required)


£150 per meeting (plus additional expenses)

Closing date: 5pm, Tuesday 5 February 2019

More information can be found here.

Any questions? Please contact the public involvement team:

PIPrecruitment@nice.org.uk or 0161 870 3020.


Email: info@healthwatchsouthwark.co.uk

Telephone: 0207 358 7005

Next event

Diabetes workshops – What Matters to You? will take place on 25 Jun 2019

Location: Etc Venues Victoria, 1 Drummond Gate, Westminster, London, SW1V 2QQ.